Generic name:fosdenopterin [ FOS-den-OP-ter-in ]
Drug class:Miscellaneous metabolic agents
What is Nulibry?
Nulibry is used to reduce the risk of death in children with molybdenum cofactor deficiency (MoCD) Type A.
Molybdenum (moe-LIB-den-um) cofactor deficiency is a rare condition in newborn babies that affects brain function and gets worse over time. Babies with MoCD begin to show symptoms within a week after birth, and this condition can lead to severe developmental delays and life-threatening health problems.
Nulibry may also be used for purposes not listed in this medication guide.
Warnings
Follow all directions on your medicine label and package. Tell each of your child's healthcare providers about all the child's medical conditions, allergies, and medicines.
Before taking this medicine
Your doctor will perform a genetic test to make sure your baby has MoCD.
Nulibry is sometimes given before genetic testing results are available. Treatment will be stopped if the test shows that your baby does not have MoCD.
How should I use Nulibry?
Follow all directions on your prescription label and read all medication guides or instruction sheets. Your doctor may occasionally change your child's dose. Use the medicine exactly as directed.
Nulibry is given using an infusion pump attached to a catheter placed into a vein. A healthcare provider can teach you how to properly use the infusion pump by yourself.
You may need to keep a diary of the dates and times for each dose you give to your child. You may...
